What is moya moya?

Moya moya disease is a rare, progressive disorder that affects the blood vessels in the brain. It is characterized by the narrowing or blockage of the arteries in the brain, which can lead to a decrease in blood supply and oxygen to the brain tissue. The name "moya moya" means "cloud of smoke" in Japanese, which refers to the appearance of the abnormal blood vessels that form in the brain.

The cause of moya moya disease is not fully understood, but it is thought to be related to genetics and autoimmune factors. The disease can occur in both children and adults, but it is more commonly seen in people of East Asian descent. Symptoms of moya moya disease can include headaches, seizures, stroke-like symptoms such as weakness or numbness on one side of the body, and difficulty speaking or understanding language.

Treatment for moya moya disease typically includes medications to manage symptoms and reduce the risk of stroke, as well as surgical procedures to improve blood flow to the brain. These may include bypass surgery or the removal of blood vessels from other parts of the body to replace damaged vessels in the brain.

Without treatment, moya moya disease can lead to a significant risk of stroke or other serious complications. However, with appropriate management and care, many people with moya moya disease are able to lead full and active lives.